NJ Coalition for Vaccination Choice: NJCVC

Straight from the State

December 3, 2008

On December 3, 2008, five parents from the Coalition met with NJ’s Health Commissioner. Read how it went down in the words of Louise Kuo Habakus:

"Commissioner Howard met with us for two full hours. Her staff continued with us for an additional thirty minutes. They listened. They asked a few questions. And the Commissioner left us with these words (not verbatim): “We had a productive meeting. I am impressed by the commitment, thoughtfulness and passion demonstrated by the parents here today. I respect the message and the way it was delivered. As a mother, I was very moved to hear the personal stories you shared. We want to work with parents to understand your concerns. We will also work with the AAP to urge them to take a look at the vaccine schedules and… [interruption from secretary, the Governor is on the phone] now, I really have to go.”

But I’m getting ahead of myself. Let’s start from the beginning. There were thirteen people present. Eight from the NJ Department of Health and Senior Services (NJDHSS):

  • Heather Howard, Commissioner, NJDHSS
  • James Brownlee, Assistant Commissioner, Epidemiology, Environmental & Occupational Health
  • Mary E. O'Dowd, Chief of Staff
  • Christina Tan, MD, Deputy Commissioner
  • Carl Rathjen, Deputy Chief of Staff
  • Angela Sorrells Washington, Program Manager, Vaccine Preventable Disease Program, Communicable Disease Program
  • Barbara Montana, MD, Medical Director, Communicable Disease
  • Dileep Sarecha, Program Manager, Vaccine Preventable Disease Program, Communicable Disease Program

And five parents: me, Ron Habakus, Claudine Liss, Maureen Drummond and Barbara Majeski, all five of us strong, educated, determined, capable voices in the parent community, all with vaccine-injured children, all members of the NJ Coalition for Vaccination Choice, all with senior corporate and/or professional credentials.

The NJDHSS invited their senior vaccine program staff to participate in this meeting. We can wonder why they asked for so many from their side to attend. Regardless, it was an opportunity to talk to all of them at the same time, to hear what they had to say, to read body language, to see where we stood on our specific demands, and to find out where we are going… with or without them.

I prepared a powerpoint presentation to organize our message and the other parents agreed to chime in with relevant facts, science and personal stories. Our objective for the meeting was to make sure they fully understood, not only the reasons behind the profound trust gap that exists between parents and our health department but the ramifications of this distrust. I wanted them to hear, in no uncertain terms, that they are creating the very thing they fear the most -- that, faced with an increasing number of vaccine mandates and absolutely no answers and no leadership behind the epidemic of autism and chronic disease facing our children, parents will increasingly abandon vaccines. Faced with “all or none,” more are choosing none. This was not meant to be a “my science versus yours” meeting. We know how those meetings go. This was our meeting and they were going to listen to the parents’ side. And we asked for a fifteen minute warning to make sure we had time to discuss our list of demands.

We started by showing them how many more shots we give our children versus 25 years ago. We noted the increase in chronic, autoimmune and neurodevelopmental disorders during precisely the same time frame. We asked, is it not exceedingly reasonable to inquire whether the one (more shots) is related to the other (more damage). We reviewed the gross underreporting in VAERS and how it ensures we will always be behind the eight ball in identifying vaccine-related problems.

We shared the government’s list of vaccine-related complications for which families are compensated. We used the Physician’s Desk Reference to list many dozens of ways to die and be harmed by vaccines. We discussed disease transmission via live virus vaccines, inappropriate test cohorts for FDA licensure, failure to use true placebos, suitability of using experimental control groups and the complete absence of studies on carcinogenic, mutagenic potential or the impairment of fertility. We reminded them that licensed vaccines are routinely withdrawn, example 1, example 2, example 3 that vaccine makers never adequately studied the simultaneous administration of so many shots, April 4, 2008, page 33 that there has never been any therapeutic benefit to doing so and that our doctors advise it anyway to increase compliance. We provided research that links vaccines to diabetes (example 2), asthma and anaphylaxis. We told them about Dr. George Lucier, the former director of environmental toxicology from the National Institutes of Environmental Health Sciences. We read excerpts from his incredibly damning expert testimony where he states that the only plausible explanation for the rise in autism supported by a strong scientific foundation is that thimerosal causes some cases of autism. We reminded them that our government has made massive mistakes in the past, bad drugs are approved and many people are killed and harmed before they are removed from the market. We sequenced through old drug and cigarette ads that made them smile and shake their heads wistfully at how foolish we once were. And then we received our fifteen minute warning.

We summarized with these take-away points:

  1. Something is very, very wrong… numerous shots, sick kids, damning science, government concession that vaccines caused autism.
  2. As bad as it is in the US, it’s worse in NJ… more shots, sicker kids, families in crisis, parents of mainstream and special needs kids fiercely divided over shrinking pool of resources
  3. NJ, bankrupt state, political corruption, home to half of the world’s pharmaceutical companies, #1 vaccination state in the US, first ever to mandate the flu shot: ineffective, rejected by health professionals and the market, no better than placebo for children under two, no adequate safety data, the vast majority of doses containing a devastating neurotoxin.
  4. NJ, parents rally, Corzine admits this is a huge issue, over 10,000 signed petition in support of parental vaccination choice, A260/S1071 languishes in both health committees. Why?
  5. For each reason they provided to support their opposition of the bill, we countered. The most important? CA and TX are also densely populous, corridor states with large immigrant populations where passage of the philosophical exemption did not compromise vaccine compliance.
  6. This is what parents see: one-sided vaccine propaganda, doctors kicking us out of their practice (see attached), FDA is not protecting us, CDC is more concerned about promotion than safety, parents can’t sue for most vaccine-related injury and death, no one can explain why our children are so sick, and ever more vaccine mandates. The result? No trust.
  7. When there is no trust, the sacred doctor-patient relationship is broken. Patients will not give their children something they think will harm them. Period, end of conversation. Parents will increasingly say: No dialogue? No choice? Then no shots! It’s not a complex equation. It’s human nature.

And we ended with our five requests:

  1. Acknowledge the public health crisis in our state and commit to work with parents in an open and transparent process to address the trust gap
  2. Remove your opposition to A260/S1071. Ask the Governor to put the full weight of his political support behind passage of this bill.
  3. Repeal the four new vaccine mandates.
  4. Provide true informed consent which includes full discussion of the risks, not just the benefits. No propaganda.
  5. Initiate and participate in a series of legislative vaccine roundtables which present all sides of the debate to help educate legislators on the issues.

We were cool, fiercely focused and in control of the message and the meeting, if we can say so ourselves. Each one of us held our own and pressed forward. We had the continuity and depth of Maureen’s 18 years of advocacy. When she pointed out that it is unconstitutional to mandate the injection of pathogens and ingredients that can kill and harm, Dr. Montana replied that the state doesn’t really mandate vaccines, the mandates are only a requirement for school admission and if parents feel strongly enough about it, they have other options. [!]

We had Claudine challenge them to broaden their inquiry, to read the work of experts such as Harris Coulter, PhD, to examine the Homefirst pediatric practice and talk with Dr. Mayer Eisenstein. She was stunned to recently learn that her own childhood pediatrician advised against receiving a pertussis vaccine because of family history but her children’s doctor failed to ask the same question, opting instead for full vaccination, demonstrating both neglect and a willingness to sacrifice a subset of the population.

We had Barbara Majeski describe how she almost lost her son after the Hepatitis B vaccine at birth and six subsequent catch-up shots. She shared a copy of the vaccine disclosure form provided to her in the hospital just hours after giving birth to Max, a form so painfully one-sided in its scare tactics with no mention of possible risks and complications.

We had Ron who exposed the extent to which our state public health officials are failing us when he asked them what will they do when the numbers of chronically ill and neurodevelopmentally disordered children rise as a direct result of these four new vaccine mandates. Dr. Montana responded, “We won’t repeal the mandates and we will follow the CDC’s lead on recommended shots.”

And we had me… a pain in their collective backside, telling them there’s an opportunity here to lead in a different kind of way, an opportunity to start closing the trust gap by supporting the choice bill and showing parents they are listening. [zero response]

You’ll soon understand why I gave ourselves a pat on the back first. Because here’s their response to our requests.

Their response:

  1. Heather Howard said that dialogue has begun, the door is open and they will be available to us.
  2. Speaking for the Commissioner who did not specifically clarify this point, Carl Rathjen said that they will not remove their opposition to A260/S1071. That is not on the table.
  3. Heather Howard said they will not repeal the mandates and they have no intention to consider that possibility right now. When further challenged, Dr. Tan said they will always evaluate new science.
  4. Several voiced their support for increased (but non-specific) effort behind vaccine education and outreach.
  5. Heather Howard smiled as she volunteered Dr. Tan who would be happy to participate in any vaccine roundtable that is organized.

So there you have it. Obtaining a two hour meeting with the health commissioner and her staff was an accomplishment. Setting the agenda and successfully delivering our message, ditto. But the bottom line is that we did not get what we wanted. The NJDHSS continues with business as usual. Our state appears unwilling to exercise independent judgment to protect the health and welfare of its residents. It seems we are more of a test case and an incubator for the CDC’s agenda. And our instinct remains true. Real change must come from the parents. Are we ready, New Jersey? We have our work cut out for us."


December 1, 2008

On December 1, 2008 the NJDHSS drafted a letter to the directors and administrators of schools and daycare facilities in NJ to clarify that they must accept religious exemptions from parents without question. The letter also addresses inconsistent enforcement in the field that has become worse as recent new mandates were enacted.

Click here to see the 2-page memo

NJCVC's Sue Collins responds with her analysis of the memo:

"I’ve received several e-mails regarding the memo that the Health Dept. [that is, NJDHSS] sent to all NJ schools regarding the religious exemption.... so let me try and clarify.

This memo is a very good thing.

The NJ state statute is 26:1a-9.1. This statute confirms that a parent needs to their own written document stating that vaccination conflicts with their religious beliefs.

"Exemption for pupils from mandatory immunization; interference with religious rights; suspension. Provisions in the State Sanitary Code in implementation of this act shall provide for exemption for pupils from mandatory immunization if the parent or guardian of the pupil objects thereto in a written statement signed by the parent or guardian upon the ground that the proposed immunization interferes with the free exercise of the pupils religious rights. Effective Nov. 11, 1974"

Based upon the state statute the health department draws up regulations to enforce the statute. These regulations are N.J.A.C. 8:57-4. The regulations have been changing over the years to make the religious exemption more restrictive and cumbersome.

"8:57-4.4 Religious exemptions
(a) A child shall be exempted from mandatory immunization if the parent or guardian objects thereto in a written statement submitted to the school, preschool, or child care center, signed by the parent or guardian, explaining how the administration of immunizing agents conflicts with the pupil's exercise of bona fide religious tenets or practices. General philosophical or moral objection to immunization shall not be sufficient for an exemption on religious grounds.
(b) Religious affiliated schools or child care centers shall have the authority to withhold or grant a religious exemption from the required immunization for pupils entering or attending their institutions without challenge by any secular health authority. "

Many school administrators took it upon themselves to judge parents' documented religious beliefs and demanded details and explanations about those beliefs. Additionally, they would deny the religious exemption letters or require parents to rewrite them several times, etc. This memo revises the NJ regulations and brings them in line with the intent of the statute and specifically states that schools must not question parents/guardians' religious exemption statements or beliefs and that membership in a particular religion is not required. It also reaffirms that all schools must follow these regulations: parochial and private, as well as child care and daycare facilities.

"When a parent or guardian submits their written religious exemption to immunization, which contains some religious reference, those persons charged with implementing administrative rules at N.J.A.C. 8:57-4.4, should not question whether the parent's professed religious statements or stated belief is reasonalbe, acceptable, sincere and bona fide. In practice, if the written statement contains the word 'religion' or 'religious' or some reference thereto, then the statement should be accepted and the religious exemption of mandatory immunizations(s) granted."

The memo also states that the language "does not mandate specificity as to membership in a recognized church or religious denomination." Therefore, the school should not ask someone their particular religion, nor does it need to be in your letter.

The memo further states that the NJ Health Dept. plans to officially amend the rules NJAC 8:57-4.4 through the Administrative Rules process to be consistent with NJSA 26:1a-9.1. They plan to further tightening up loose ends- this also is good news.

As an aside, at a meeting with Health Commissioner Heather Howard several months ago, myself and two other parents expressed how the religious exemption was not working as intended. There was no consistency and parents were being bullied and harassed. We can’t say if this memo was partly an outcome of that meeting - but I like to think so."

Sue Collins


October 2008

In October 2008, the NJ Department of Health & Senior Services (NJDHSS) issued a position statement about our bill, A260/S1071 explaining the reasons they oppose parents' rights to Conscientious Exemption to Mandatory Immunizations. Dr. Paul King authored a fact-based response to their position statement on behalf of the NJCVC.



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